Post by Deleted on Apr 21, 2015 15:51:08 GMT
Afternoon all, most of you already know my niece Olivia was born 18months ago with a cleft lip and palate, next month is the the annual CLAPA Awareness week.
CLAPA is the only UK-wide voluntary organisation specifically helping those with, and affected by, cleft lip and palate. It is unique.
CLAPA was set up in 1979 as a partnership between parents and health professionals. It provides support for new parents, and for people with the condition and their families, from infancy through to adulthood. CLAPA National Office is based in London with a network of branches (branches are all run by volunteers) and many other regional contacts in the United Kingdom, all committed to providing the support needed by families affected by cleft lip and/or palate.
Branches are run by people who have themselves benefited from the organisation, often working in partnership with local health professionals.
Clapa's key functions are to:
Organise local parent-to-parent support through its nation-wide network.
Run a specialist service for parents and health professionals seeking help feeding babies with clefts.
Develop support for children and adolescents affected by clefts at school and in social settings through such activities as confidence-building camps.
Encourage and support research into causes and treatment of cleft lip and palate.
Represent the interests of patients and parents, influencing policy on future treatment of cleft lip and palate.
Conduct educational seminars for health professionals and the general public.
Raise funds in the community for equipment, literature and services.
Publish and distribute a range of information leaflets, increasing public awareness of the condition.
Support projects in countries where cleft treatment is limited or unavailable.
To celebrate awareness and show how thankful our family is for the help and support given to us by CLAPA myself and my family are taking part in a sponsored walk around Hyde Park on the 9th of May. We like to raise a few quid so I would to ask you all to have a look at our page www.virginmoneygiving.com/team/thebruces and donate if you can.
Thank you all.
Matt
xx
CLAPA is the only UK-wide voluntary organisation specifically helping those with, and affected by, cleft lip and palate. It is unique.
CLAPA was set up in 1979 as a partnership between parents and health professionals. It provides support for new parents, and for people with the condition and their families, from infancy through to adulthood. CLAPA National Office is based in London with a network of branches (branches are all run by volunteers) and many other regional contacts in the United Kingdom, all committed to providing the support needed by families affected by cleft lip and/or palate.
Branches are run by people who have themselves benefited from the organisation, often working in partnership with local health professionals.
Clapa's key functions are to:
Organise local parent-to-parent support through its nation-wide network.
Run a specialist service for parents and health professionals seeking help feeding babies with clefts.
Develop support for children and adolescents affected by clefts at school and in social settings through such activities as confidence-building camps.
Encourage and support research into causes and treatment of cleft lip and palate.
Represent the interests of patients and parents, influencing policy on future treatment of cleft lip and palate.
Conduct educational seminars for health professionals and the general public.
Raise funds in the community for equipment, literature and services.
Publish and distribute a range of information leaflets, increasing public awareness of the condition.
Support projects in countries where cleft treatment is limited or unavailable.
To celebrate awareness and show how thankful our family is for the help and support given to us by CLAPA myself and my family are taking part in a sponsored walk around Hyde Park on the 9th of May. We like to raise a few quid so I would to ask you all to have a look at our page www.virginmoneygiving.com/team/thebruces and donate if you can.
Thank you all.
Matt
xx
